oh my...

time is flying by... here is updated picture of my little guy and his new helmet... will blog soon to catch everyone up on our little life.

happy thanksgiving!! :)

the night before...

after what seems like the loopiest roller coaster i have ever been on, things are all set and we are scheduled for Landon's tube surgery for tomorrow at 6 in the morning...i am a little apprehensive. i am a little excited. i am a little scared. i am praying that his hearing loss will improve with this surgery. i am praying that we bring him home tomorrow afternoon and he responds to noises he has never responded to before. i am praying that the surgery goes wonderful... i believe in miracles.

we had a helmet check up today and his little noggin has improved! we were measured for a new helmet which should be coming in early next week. it is MUCH different than the one he has on now... it will be big and blue... but don't you worry... i will be blinging it! we were told he would have to wear this new helmet for the same amount of time (23 hours a day) for three more months... i know it will go fast... i still can't believe that he has been wearing a helmet for almost two months already!

(September 11, 2012)

 (November 5, 2012)

(September 20, 2012)

 

(November 1, 2012) 

his torticollis is coming along... i think of all his little things he is dealing with... this one bothers me the most. i know it is such a long process and i just want it fixed. i want him to turn his head all the time to the left. i want him to never tilt his head to the left. as he is getting older, he is becoming more resistant to stretching the muscle... makes sense... stretching a tight muscle could being irritating... who could blame him?  but it could be years before we see this progress. i will be patient... no matter how overwhelmed i get.

i am sure i will update again soon on the surgery and his hearing. after the surgery, we will reassess his hearing and possibly start looking at options to get him to hear better, if need be. thank you for all the prayers tomorrow morning! we will take them all!

we need some prayers...

landon's surgery is scheduled for tuesday... but we have hit a bump in the road dealing with insurance companies and blood work. my insurance company only covers blood work done at QUEST Diagnostics which meant they had to fax the results over to chop.

blood work was done early on friday. i received a phone call from chop yesterday explaining they did not get the results yet. the kind nurse told me if she did not get the results by today that they would cancel the surgery. i called quest yesterday and the woman on the phone told me that they MAILED the results and i politely asked if she would fax the results to our nurse.

i wanted to follow up on all this blood results drama and i called chop today to make sure they had received his results. they have not. i had to call QUEST back today and ask them again to fax the results... and as she was looking at his results told me that the woman who drew his blood last friday did not get enough so they couldn't get the results. why did i not get this information? and why was this information not faxed to chop? ... almost a WHOLE week later!!

tears are streaming down my face mostly because i am so angry. i am waiting for a phone call back from the nurse to see what to do next. i am hoping to just get the blood work done at chop and pay full price. i would have paid full price anyway if i would have known that QUEST does a HORRIBLE job at drawing blood on babies.

please pray that we are able to get his blood work drawn somewhere today and surgery goes according to planned next tuesday. i just want those little ears to be fluid free so we can begin the process with his hearing loss.